My name is Hannah, and I refused to let Multiple Sclerosis decide my life
Date 27-Dec-2025 | By : Hannah AitkenI was 17 when my body first whispered that something wasn’t right. I was so tired I couldn’t get out of bed. Not “teenage tired” or “burnt out” tired—this was bone-deep exhaustion that didn’t make sense. I brushed it off, because why wouldn’t I? At that age, illness doesn’t feel like a possibility.
From Misdiagnosis to Miracles: How My Little Girl Nadeen Beat the Odds
Date 21-Nov-2025 | By : JerusalemWhen I first held my daughter Nadeen in my arms, I felt a kind of love I had never known before. She was my first child, a beautiful baby born in Ethiopia, filling our lives with laughter and light. Like any mother, I dreamed of a bright, carefree childhood for her—playgrounds, birthday parties, and the first day of school. But life, as I would learn, had other plans.
Caring for a Child with Sickle Cell Anemia or Thalassemia During Festive Season
Date 09-Oct-2025 | By : Gaurav KharyaFestivals bring families together in joy, celebration, and tradition. But for parents of children living with chronic conditions like Sickle Cell Anemia or Thalassemia, this season can feel overwhelming.
A world united against Sickle Cell Anemia: lessons from Africa
Date 22-Aug-2025 | By : Dr. Gaurav KharyaI have just returned from Africa, where my days were filled with conversations with children, young adults, and families living under the shadow of sickle cell anemia. What I saw there was more than just a health crisis — it was a human crisis.
Our Daughter, The Fighter: Riona’s Journey Through Leukemia
Date 20-Aug-2025 | By : Tanuja Mitra & Pranav GhoshWe still remember the day we found out Riona had leukemia. It was September 30, 2022. She was just 10—full of life, stubborn about food, always running around with more energy than we could handle.
Hope and Resilience : My Fight Against Sickle Cell Disease
Date 26-Jul-2025 | By : G. KabueThis is my story, and that of my daughter, Rinna. It begins in the early 2000s in the heart of Africa: the Democratic Republic of Congo.It appears that this continent is home to one of the most severe forms of this disease. I was to learn the hard way that it is highly ...
The Story of My Angel
Date 08-Jul-2025 | By : Priti JhaFrom the outside, Pari looked like any other child. She had bright eyes, a curious mind, and a voice full of questions. She laughed loudly, ran fast, and talked endlessly about the moon, colors, and her dreams of becoming a teacher one day.
Joseph’s BMT Proved That Tough Battles Are Worth Fighting
Date 27-Jun-2025 | By : By Paul KavumaI still remember holding tiny Joseph in my hands–this fragile, beautiful life that completed us–when the doctors told me he has a dangerous, debilitating disease that can cause him immense pain and suffering growing up.
A Visit to Africa
Date 16-Jun-2025 | By : By Dr Gaurav KharyaJust returned from Africa, a continent which bears the highest burden of sickle cell disease in the world.
अब हाप्लो आइडेंटिकल बोन मैरो ट्रांसप्लांट जैसे विकल्प मौजूद हैं जो पहले सिर्फ एक सपना थे
Date 15-May-2025 | By : अखिलेश कुमार मिश्रामेरा नाम अखिलेश है। मैं उत्तर प्रदेश के अयोध्या ज़िले के पास एक छोटे से गाँव में कपड़ों की दुकान चलाता हूँ। ज़िंदगी बस किसी तरह चल रही थी। सीमित आमदनी, सीमित ज़रूरतें और छोटे-छोटे सपने थे। लेकिन जब मेरा बेटा अक्षित सिर्फ चार महीने का था और उसका रंग अचानक पीला पड़ गया, वह कमज़ोर हो गया, तब हमारी ज़िंदगी हमेशा के लिए बदल गई।