Joseph’s BMT Proved That Tough Battles Are Worth Fighting
Posted on 2025-06-27 By : By Paul Kavuma
I still remember holding tiny Joseph in my hands–this fragile, beautiful life that completed us–when the doctors told me he has a dangerous, debilitating disease that can cause him immense pain and suffering growing up. Sickle Cell Disease it was. He was the first in our family to be diagnosed with it.
My healthy, pulpy 6 month old baby was soon gripped by intense pain, weakness, and frequent infections. This was not the life I wanted for my child. As a parent, it was distressing to watch him go through so much, knowing there’s only so much we could do.
Yes, we took him to doctors, he was given medication, there was a lot of family support–but, nonetheless, my child was still suffering. He was in pain. Constant pain. A list of ‘Dos and Dont’s’ had taken control of his life. Day and night, my mind was consumed with thoughts like– “What if he fails to survive?” or “How will we ever do without him.”
He was growing up, he had so much waiting for him to be explored. Ten years had passed–ten years of us living in the abyss of worry, and him surviving the cruel pain his disease had brought.
