Managing Sickle Cell Disease and Thalassemia with blood transfusion
Date 06-Apr-2024 | by AdminBlood transfusion therapy is a crucial treatment for patients grappling with genetic blood disorders such as sickle cell disease and thalassemia.
Meeting Jay and Akshat
Date 06-Apr-2024 | by AdminEvery first Thursday of the month, I travel to Raipur for my OPD at Petal's Hospital. During these visits, I see many patients suffering from blood disorders such as Sickle Cell Disease (SCD) and thalassemia
CAR T Cell Therapy: redefining cancer care in India, and the world
Date 06-Apr-2024 | by AdminCAR T cell therapy is a form of immunotherapy that harnesses the power of a patient's immune system to combat cancer.
Recovery from a bone marrow transplant is a marathon, not a sprint
Date 12-Aug-2024 | by AdminBone marrow transplant has emerged as a reliable treatment option for millions of children suffering from blood disorders.
With me in my battle against cancer
Date 11-Sep-2024 | by AdminMy name is Desire Namazzi, and I am 24 years old. I am a resident of Uganda. Today, I am beginning my final year of undergraduate studies
Life Beyond Sickle Cell - A story of Love, Strength, and Faith
Date 02-Dec-2024 | by AdminMy country, Nigeria, was recently dubbed the “sickle cell capital” of the world. It has the highest number of sickle cell disease cases..
हमारी बेटी के दो जन्मदिन, एक डॉक्टर का दिया अनमोल उपहार
Date 12-Mar-2025 | by Adminजब भी उसे ब्लड ट्रांसफ्यूजन के लिए अस्पताल ले जाया जाता, तो सुई के डर से वह जोर-जोर से रोने लगती। एक पिता के लिए इससे ज़्यादा दुखद कोई बात नहीं हो सकती कि उसकी बच्ची दर्द में हो और वह कुछ नहीं कर सके।
सही इलाज , समाज की मदद से मिली अक्षत को सिकल सेल डिजीज से राहत
Date 14-Apr-2025 | by Adminअक्षत को सिकल सेल एनीमिया के कारण कठिनाइयों का सामना करना पड़ा। सही इलाज, समय पर निर्णय, मदद और उम्मीद ने उनका जीवन बदल दिया। अब वह स्वस्थ होकर सामान्य जीवन जी रहे हैं।
Why Thalassemia Screening Can’t Wait
Date 07-May-2025 | by AdminEvery year, on May 8, we observe World Thalassemia Day. Its objective is to remind us, medical professionals and other stakeholders, of the resilience of patients living with this genetic blood disorder and the urgency of improving care.
अब हाप्लो आइडेंटिकल बोन मैरो ट्रांसप्लांट जैसे विकल्प मौजूद हैं जो पहले सिर्फ एक सपना थे
Date 15-May-2025 | by Adminमेरा नाम अखिलेश है। मैं उत्तर प्रदेश के अयोध्या ज़िले के पास एक छोटे से गाँव में कपड़ों की दुकान चलाता हूँ। ज़िंदगी बस किसी तरह चल रही थी। सीमित आमदनी, सीमित ज़रूरतें और छोटे-छोटे सपने थे। लेकिन जब मेरा बेटा अक्षित सिर्फ चार महीने का था और उसका रंग अचानक पीला पड़ गया, वह कमज़ोर हो गया, तब हमारी ज़िंदगी हमेशा के लिए बदल गई।
A Visit to Africa
Date 16-Jun-2025 | by AdminJust returned from Africa, a continent which bears the highest burden of sickle cell disease in the world.
Joseph’s BMT Proved That Tough Battles Are Worth Fighting
Date 27-Jun-2025 | by AdminI still remember holding tiny Joseph in my hands–this fragile, beautiful life that completed us–when the doctors told me he has a dangerous, debilitating disease that can cause him immense pain and suffering growing up.
The Story of My Angel
Date 08-Jul-2025 | by AdminFrom the outside, Pari looked like any other child. She had bright eyes, a curious mind, and a voice full of questions. She laughed loudly, ran fast, and talked endlessly about the moon, colors, and her dreams of becoming a teacher one day.
Hope and Resilience : My Fight Against Sickle Cell Disease
Date 26-Jul-2025 | by AdminThis is my story, and that of my daughter, Rinna. It begins in the early 2000s in the heart of Africa: the Democratic Republic of Congo.It appears that this continent is home to one of the most severe forms of this disease. I was to learn the hard way that it is highly ...
Our Daughter, The Fighter: Riona’s Journey Through Leukemia
Date 20-Aug-2025 | by AdminWe still remember the day we found out Riona had leukemia. It was September 30, 2022. She was just 10—full of life, stubborn about food, always running around with more energy than we could handle.
A world united against Sickle Cell Anemia: lessons from Africa
Date 22-Aug-2025 | by AdminI have just returned from Africa, where my days were filled with conversations with children, young adults, and families living under the shadow of sickle cell anemia. What I saw there was more than just a health crisis — it was a human crisis.
Caring for a Child with Sickle Cell Anemia or Thalassemia During Festive Season
Date 09-Oct-2025 | by AdminFestivals bring families together in joy, celebration, and tradition. But for parents of children living with chronic conditions like Sickle Cell Anemia or Thalassemia, this season can feel overwhelming.
From Misdiagnosis to Miracles: How My Little Girl Nadeen Beat the Odds
Date 21-Nov-2025 | by AdminWhen I first held my daughter Nadeen in my arms, I felt a kind of love I had never known before. She was my first child, a beautiful baby born in Ethiopia, filling our lives with laughter and light. Like any mother, I dreamed of a bright, carefree childhood for her—playgrounds, birthday parties, and the first day of school. But life, as I would learn, had other plans.
My name is Hannah, and I refused to let Multiple Sclerosis decide my life
Date 27-Dec-2025 | by AdminI was 17 when my body first whispered that something wasn’t right. I was so tired I couldn’t get out of bed. Not “teenage tired” or “burnt out” tired—this was bone-deep exhaustion that didn’t make sense. I brushed it off, because why wouldn’t I? At that age, illness doesn’t feel like a possibility.