03 FEB 2025 | By Luis

My BMT was a turning point in my life. It gave me hope.

I’m Luis. I’m 51 years old, a drummer from Portugal, and until a few years ago, my life revolved around movement. Cycling, racing, the gym—being active wasn’t a hobby, it was my identity.

27 DEC 2025 | By Hannah Aitken

My Name is Hannah: How I Overcame Multiple Sclerosis

I was 17 when my body first whispered that something wasn’t right. I was so tired I couldn’t get out of bed. Not “teenage tired” or “burnt out” tired—this was bone-deep exhaustion that didn’t make sense. I brushed it off, because why wouldn’t I? At that age, illness doesn’t feel like a possibility.

21 NOV 2025 | By Jerusalem

From Misdiagnosis to Miracles: How Little Nadeen Beat the Odds

When I first held my daughter Nadeen in my arms, I felt a kind of love I had never known before. She was my first child, a beautiful baby born in Ethiopia, filling our lives with laughter and light. Like any mother, I dreamed of a bright, carefree childhood for her—playgrounds, birthday parties, and the first day of school. But life, as I would learn, had other plans.

09 OCT 2025 | By Gaurav Kharya

Caring for Children with Sickle Cell or Thalassemia During Festivals

Festivals bring families together in joy, celebration, and tradition. But for parents of children living with chronic conditions like Sickle Cell Anemia or Thalassemia, this season can feel overwhelming. While other families are planning late-night gatherings, heavy meals, and travel, caregivers must balance festive cheer with the constant responsibility of safeguarding their child’s health. The contrast often makes parents feel torn between protecting their child and allowing them to enjoy the celebrations.

22 AUG 2025 | By Dr. Gaurav Kharya

A World United Against Sickle Cell Anemia: Vital Lessons from Africa

I have just returned from Africa, where my days were filled with conversations with children, young adults, and families living under the shadow of sickle cell anemia. What I saw there was more than just a health crisis — it was a human crisis. Mothers holding their children through yet another painful episode, teenagers missing school because fatigue made even walking a few steps unbearable, and families traveling hundreds of kilometers just to reach the nearest hospital in the hope of finding care.

20 AUG 2025 | By Tanuja Mitra & Pranav Ghosh

Our Daughter, The Fighter: Riona’s Inspiring Journey Through Leukemia

We still remember the day we found out Riona had leukemia. It was September 30, 2022. She was just 10—full of life, stubborn about food, always running around with more energy than we could handle. When she started showing signs of fatigue and appetite loss, we thought it was just a phase—maybe a vitamin deficiency, or perhaps the stress of the pandemic. We never imagined that the word cancer could become a part of our lives.

26 JUL 2025 | By G. Kabue

Hope and Resilience: My Personal Fight Against Sickle Cell Disease

This is my story, and that of my daughter, Rinna. It begins in the early 2000s in the heart of Africa: the Democratic Republic of Congo.

08 JUL 2025 | By Priti Jha

The Story of My Angel: A Miracle of Healing

From the outside, Pari looked like any other child. She had bright eyes, a curious mind, and a voice full of questions. She laughed loudly, ran fast, and talked endlessly about the moon, colors, and her dreams of becoming a teacher one day.

27 JUN 2025 | By Paul Kavuma

Joseph’s BMT: Proving That Tough Battles Are Worth Fighting

I still remember holding tiny Joseph in my hands–this fragile, beautiful life that completed us–when the doctors told me he has a dangerous, debilitating disease that can cause him immense pain and suffering growing up. Sickle Cell Disease it was. He was the first in our family to be diagnosed with it.

16 JUN 2025 | By Dr Gaurav Kharya

Strengthening Healthcare: A Medical Visit to Africa

Just returned from Africa, a continent which bears the highest burden of sickle cell disease in the world. As a hematologist, it pains me to see millions of lives debilitated by this painful condition. With timely diagnosis, proper management, and bone marrow transplant, we can now offer a cure. And survivors who have fought and overcome the disease are beacons of courage and hope—showing others that treatment is possible, and is safe. With the right collaborations, we can help Africa and the world change the narrative around the disease.

15 MAY 2025 | By अखिलेश कुमार मिश्रा

Haploidentical Bone Marrow Transplant: From Dream to Reality

मेरा नाम अखिलेश है। मैं उत्तर प्रदेश के अयोध्या ज़िले के पास एक छोटे से गाँव में कपड़ों की दुकान चलाता हूँ। ज़िंदगी बस किसी तरह चल रही थी। सीमित आमदनी, सीमित ज़रूरतें और छोटे-छोटे सपने थे। लेकिन जब मेरा बेटा अक्षित सिर्फ चार महीने का था और उसका रंग अचानक पीला पड़ गया, वह कमज़ोर हो गया, तब हमारी ज़िंदगी हमेशा के लिए बदल गई।

07 MAY 2025 | By Dr. Gaurav Kharya

Why Thalassemia Screening Can’t Wait: A Vital Step for Health

Every year, on May 8, we observe World Thalassemia Day. Its objective is to remind us, medical professionals and other stakeholders, of the resilience of patients living with this genetic blood disorder and the urgency of improving care. But this year’s theme, “Together for Thalassaemia: Uniting Communities, Prioritising Patients,” resonates deeply with me, because  as a doctor, I have seen the silent struggles thalassemia patients and their families face every day.

14 APR 2025 | By प्रहलाद साहू

Overcoming Sickle Cell Disease: Akshat’s Journey to Relief

जब अक्षत एक साल का था, तो खेलते-खेलते उसे बिजली का झटका लग गया। उसके बाद लगातार बुखार आने लगे। हमने कई डॉक्टरों को दिखाया, और तब पहली बार किसी ने कहा कि “सिकल सेल एनीमिया” की जांच कराइए। रिपोर्ट ने हमारी ज़िंदगी बदल दी—अक्षत सिकल सेल पॉजिटिव निकला। उसका हीमोग्लोबिन केवल 4 mg था।

12 MAR 2025 | By अमित माहतो

Two Birthdays for Our Daughter: A Precious Gift of Life

जब मेरी बेटी दिक्षिता केवल छह महीने की थी, तब हमने पहली बार सुना कि उसे थैलेसीमिया है। वह बहुत ज़्यादा पीली दिखती थी और हर 15 दिन में उसे रक्त चढ़ाने की ज़रूरत पड़ती थी। डॉक्टरों ने जब कहा कि यह जीवनभर चलता रहेगा, तो हमारी दुनिया मानो ठहर गई।

11 SEP 2024 | By Desire Namazzi

With Me in My Battle Against Cancer: A Story of Survival

My name is Desire Namazzi, and I am 24 years old. I am a resident of Uganda. Today, I am beginning my final year of undergraduate studies, focusing on social sciences with a major in Psychology and a minor in Sociology.

12 AUG 2024 | By Dr. Gaurav Kharya

Recovery from a Bone Marrow Transplant: A Marathon, Not a Sprint

My name is Desire Namazzi, and I am 24 years old. I am a resident of Uganda. Today, I am beginning my final year of undergraduate studies, focusing on social sciences with a major in Psychology and a minor in Sociology.

06 APR 2024 | By Dr. Gaurav Kharya

CAR T-Cell Therapy: Redefining Cancer Care in India and the World

Cancer has long been a formidable adversary, challenging medical professionals to explore innovative treatments. Among these, Chimeric Antigen Receptor (CAR) T cell therapy has emerged as a ground-breaking approach, offering new hope to patients in India and around the world.

06 APR 2024 | By Dr. Gaurav Kharya

Meeting Jay and Akshat: A Story of Hope and Resilience

Every first Thursday of the month, I travel to Raipur for my OPD at Petal's Hospital. During these visits, I see many patients suffering from blood disorders such as Sickle Cell Disease (SCD) and thalassemia, as well as blood cancers. The prevalence of SCD and thalassemia is particularly high in this region. Most of these children face numerous complications due to these blood disorders. Most patients opt for the management of the disease with medicines and blood transfusion but with age even the this treatment leads to many other complications. The only curative treatment option available, Bone Marrow Transplant, is not commonly preferred due to its cost and associated risks.

06 APR 2024 | By Dr. Gaurav Kharya

Managing Sickle Cell Disease and Thalassemia with Blood Transfusions

Blood transfusion therapy is a crucial treatment for patients grappling with genetic blood disorders such as sickle cell disease and thalassemia. Blood transfusions offers relief from the symptoms and help manage the disease. But the transfusions have limitations and drawbacks. So, it's important to weigh the advantages of blood transfusions against its potential drawbacks to make an informed decision.